Tia-Leigh Streamer, 25, from Dorset, U.K., suffers from blepharospasm—a rare condition that causes uncontrollable eyelid spasms, making it impossible for her to open her eyes without medical help. Since March 2024, she has relied on Botox injections every 8–10 weeks to temporarily regain vision. When the effects wear off, she must tape or glue her eyes open or hold them manually to see.

“To be told I’ve got this for life and not know why is hard,” she said. “Some days I get really down about it.” The condition forced her to quit her career plans as an accountant, avoid screens, and limit her independence. She no longer leaves the house alone and has given up hobbies like crocheting.

Tia had Botox before her December 2024 wedding to ensure she could see on her big day. Looking ahead, she fears how her condition might impact motherhood, but remains hopeful. “We’re still adjusting dosages and injection spots to find a better balance,” she shared. There is currently no cure—only ongoing management.